Our preop started with the usual height, weight, blood pressure, EKG, and echocardiogram, and chest xrays. Then we met with a nurse practitioner who went over the procedure. Yikes. Disgusting. Horrifying. Unbelievable that they're going to do ALL that on a 12 pound kid with a heart the size of his little fist. I stopped creating mental images at "breaking the sternum, bypass complications (stroke?!), potential animal parts to help with repair (weird.), and using permanent wire to close the sternum area inside back up. (No, he shouldn't set the alarms off at the airport!) She said surgery times can vary obviously, but hopefully would be in ICU by late afternoon. The first part of the surgery that takes awhile is getting all of his body scrubbed and getting tubes in all over. He'll be sedated for that though obviously.
No more gory details, but it's nuts. Now I know why some people say these surgeons have "God Complexes" because they are doing God's intricate work to say the least. And save lives. And are good at it. And get paid lots of money. And probably have hot girlfriends or wives. And drive fancy cars. (Okay, maybe not the last two, but I'm going to guess at least one of them for sure.)
Miles will be sedated for 24-48 hours post surgery, then the ventilator comes out. Then we wait and see how he does. NICU for anywhere from 4-5 days, then regular peds cardiac floor. Best case scenario he goes home at 10 days, or 2 weeks or more depending on complications. We won't talk complications, because there are too many, most are terrible, and I can't even think about that. (Did I mention we have to re-do infant CPR training before we leave the hospital?..which reminds me, Grandma and Grandpa Winkler are helping with some after care in the following weeks..probably ought to have them watch some you tube videos.)
Then we met with a child life specialist. They're jobs are so amazing, I considered training to become one when I couldn't find my first teaching job. If you don't know what one is, google it, it's pretty cool. But for now, she asked us what we had questions about, showed us pictures on an ipad of real post-op cardiac patients, what the OR will look like, machines, tubes, you name it. I'll post some pics of Miles, his room, the hospital, etc. next week. It's a pretty amazing facility. Nolan will come the second week to visit, he'll love it. The child life specialist will talk to him, show him some things, and he'll play on the playground, playrooms, etc.
|Playground outside only for patients and families. Today I saw an adolescent patient outside, with his IV's, doing therapy stair work.|
|The outfit was very fitting for our day. He did great.|