Sunday, July 27, 2014

And it's here. ....

Ryan and I were just talking about how we can't believe the day is here.  We've been waiting/fretting this day since the day Miles was born.  March 3rd we were hit with the surprise of his diagnosis AND the news that he had a major congenital  heart defect (s). What is supposed to be one of the best days of your life turned to the most heartbreaking one ever.  That story will be told one day.

We've watched Miles' heart beat so hard and fast,  and physically felt his heart struggle and pound against ours for almost 5 months.  We were fortunate that he didn't go into heart failure sooner. . It was expected at 4-5 weeks.  Our superhero made it to 4 months.

We have lots of mixed emotions. . Mostly that we're glad to get it over with, even though there's a strong chance of needing more work done or a pacemaker. We felt like we accepted God's miracle and challenge of raising this special boy, who also happened to have a broken heart.  Now we pray that God is able to fix his heart.  He's helped quite a bit with mending ours.

Tonight I cut his nails (they grow like weeds! ), picked him up by his armpits lots,  did lots of tummy time, bathed and scrubbed him with antibacterial surgical soap,  and got him in his jammies. We took one last picture of his flawless chest.  I also got a picture of a major peeing episode on Ryan before bath.  :)

Thanks to those of you who have helped us,  are currently helping us,  and those that are praying for us. 

I'm off to enjoy a shower where I don't have to wear sandals.  Pretty  sure we're not going to sleep much. .. finishing up loose ends around the house and leaving at 4:45 in the morning.

PS... Dr. MacIver had better be sleeping soundly and getting his rest. 

We won't be posting many updates on Facebook,  but will mostly on here.  Either become a follower or check back often for updates if you'd like.

1 comment:

  1. Will be praying and sending strength for him and you all. You too are a superhero girl.